Post-transplant Day 34 (10/19/06) -- Charley’s New Life after Discharge

Charley’s first day at the Jimmy Fund Clinic started 11:30 am. The parking garage was full so we eventually found a parking space on the 6^th low level of the basement garage across the street. It is a big warning to fighting cancers due to a fact that the cancer hospital is overcrowded even at the garage. Charley was led to a private room right after the registration. He was isolated from the playroom and other children. It’s a long day. The nurse drew the blood as step one. The clinician was happy to see Charley’s recovery and made dose reduction on methyl prednisone, a graft versus host diseases (GVHD) drug. No blood transfusion was necessary. The only deficiency was potassium so Charley has to eat banana and supplement. The IV fluid also changed to high potassium.

Ms. Erin Le, the ELS teacher came to the clinic teaching Charley. In addition to the language lesson, they played “Guess Who” with fun. We greatly appreciated her and Children Hospital’s education program over the BMT period. Charley likes his teachers very much! His English and Math seem to be improving.

Charley designed a DIY craft on his work station (10/21/2006)