Post-transplant Day 32 (10/17/06)

The doctor informed a surprise decision that Charley could be discharged today after the operation of removing the lumen double lines on right chest. His neutrophil count kept 1,330. The nurse continued the comprehensive lesson of home-care and taking care the port and one-week IV of fluid at home. Washing hands is a golden rule. Charley only can meet healthy visitors outdoors. We went through a list of “prohibition”, including food unsealed/exposed more than one hour, avoidable third party persons, indoor plants, etc. This is a challenge but solemn mission to all the transplant recipients’ family. From now on, we are practicing a germ-free living at home for 9 -12 months. If Charley is not infected, he will be taken care at Jimmy Fund Clinic of Dana-Farber Cancer Institute. Charley understands the importance of living clean. Charley was so excited by the notice of going home although he could not eat anything since 8 am. He keeps telling how much he misses two catty pets. This operation was standby and we waited until 11:30 pm. The operation department apologized for rescheduling due to overtime surgeries. Nehemiah had to go home for cleaning up the house, especially the bedding set. Deborah was exhausted for holding Charley’s hunger and such a long waiting. Anyhow, tomorrow Charley will go home definitely.

Prayer request for post-discharge living:

1. Strengthening Charley and parents during a period of time that Charley needs a frequent clinical appointment,
2. Zero infection after discharge,
3. Less impact by the graft-versus-host diseases,
4. Charley still has a rich and meaningful living while he is isolated.